| Member | Address | Seat Information |
| Vacant | | Appt by Gov; Geneticist |
| Vacant | | Appt by Gov; Rep LDH |
| Airhart, Libby N. | 1005 Hayes St
Breaux Bridge, LA 70517 | Appt by Gov; Caregiver for Person w/ Rare Disease; Chair |
| Andersson, Hans C. | 6030 Hurst St
New Orleans, LA 70118-6130 | Appt by Gov; Phy w/ Exp in Rare Diseases |
| Benchea, Marissa A. | 1450 Poydras St., Suite 2046
New Orleans, LA 70112 | Appt by Gov; Person w/ Rare Disease |
| Borrillo, Jennifer L. | 2901 Annunciation St
New Orleans, LA 70115-1003 | Appt by Gov; Rep Academic Research Inst that Conducts Rare Disease Research |
| Garrett, Deiadra J., M.D. | 701 Elysian Fields Dr
Lafayette, LA 70508-7246 | Appt by Gov; Phy w/ Exp in Rare Diseases |
| James, Jonathan | 37325 Market Place Dr., Suite B
Prairieville, LA 70769 | Appt by Senate Pres |
| Klingsberg, Ross C. | 6025 Pitt St
New Orleans, LA 70118-6010 | Appt by Gov; Rep Academic Research Inst that Conducts Rare Disease Research |
| Moore, Carolyn L. | 18762 Lake Harbor Ln
Prairieville, LA 70769-5278 | Appt by Gov; RN or Advanced RN w/ Exp inTreating Rare Diseases |
| Rouse, Kelly, MS, BCBA, LBA | 425 Elmwood St
Shreveport, LA 71104-5009 | Appt by House Speaker 8/20/2021; Appt Vice Chair by Gov 1/21/2022 |
| Williams, Lauren R. | 17031 Bradford Ave
Greenwell Springs, LA 70739-5766 | Appt by Gov; Rep Rare Disease Patien Org |