§1109.2. Public information concerning Down syndrome
A. The department shall identify current, evidence-based, written information
concerning Down syndrome that meets all of the following criteria:
(1) Has been reviewed by medical experts and national and local Down syndrome
organizations.
(2) Is designed for use by an expectant parent who receives a prenatal test result for
Down syndrome or a parent of a child who receives a diagnosis of Down syndrome.
(3) Does not engage in discrimination based on disability or genetic variation by
explicitly or implicitly presenting pregnancy termination as a neutral or acceptable option
when a prenatal test indicates a probability or diagnosis that the unborn child has Down
syndrome or any other health condition.
(4) Is culturally and linguistically appropriate for potential recipients of the
information and includes all of the following:
(a) Information addressing physical, developmental, educational, and psychosocial
outcomes, life expectancy, clinical course, and intellectual and functional development and
treatment options for individuals with Down syndrome.
(b) Contact information for national and local Down syndrome education and
support programs and services, including information hotlines, resource centers, and
clearinghouses.
B. With respect to public information concerning Down syndrome, the department
shall do all of the following:
(1) Provide the information identified pursuant to Subsection A of this Section to
healthcare facilities and healthcare providers that furnish prenatal care, postnatal care, or
genetic counseling to expectant parents who receive a prenatal test result for Down syndrome
and parents of a child diagnosed with Down syndrome.
(2) Make available the information identified pursuant to Subsection A of this
Section on its Internet website.
C.(1) Upon receipt of a positive result from a test for Down syndrome, a healthcare
facility or healthcare provider shall provide to the expectant parent or the parent of the child
diagnosed with Down syndrome the written information provided or made available by the
department pursuant to Subsection B of this Section.
(2) All information provided pursuant to the provisions of this Section shall be
culturally and linguistically appropriate for the recipient of the information, and shall not
engage in discrimination based on disability or genetic variation by explicitly or implicitly
presenting pregnancy termination as a neutral or acceptable option when a prenatal test
indicates a probability or diagnosis that the unborn child has Down syndrome or any other
health condition.
Acts 2014, No. 352, §1; Redesignated from R.S. 40:1300.392 by HCR 84 of 2015
R.S.