Skip Navigation Links
Skip Navigation Links
Boards and Commissions
Search for Board Members

Louisiana Rare Disease Advisory Council

c/o Jantz Malbrue
Genetic Diseases Program, OPH/BFH
1450 Poydras St., Suite 2046
New Orleans, LA 70112


(504) 568-2644



R.S. 40:1122.1 (HB 460, 2021 RS)


MemberAddressSeat Information
Airhart, Libby N.3444 Grand Point Hwy
Breaux Bridge, LA 70517-6219
Appt by Gov; Caregiver for person w/rare disease; Chair
Allain, Meredith W., M.D.Ochsner Clinic Foundation
1319 Jefferson Hwy
New Orleans, LA 70121
Appt by Gov; Geneticist
Andersson, Hans C.6030 Hurst St
New Orleans, LA 70118-6130
Appt by Gov; Physician w/ exp in rare diseases
Benchea, Marissa A.1 A Audubon Ct. Unit A
Thibodaux, LA 70301-4947
Appt by Gov; Person w/rare disease
Borrillo, Jennifer L.2901 Annunciation St
New Orleans, LA 70115-1003
Appt by Gov; Rep academic research inst that conducts rare disease research
Garrett, Deiadra J., M.D.701 Elysian Fields
Lafayette, LA 70508-7246
Appt by Gov; Physician w/ exp in rare diseases
James, Jonathan37325 Market Place Dr., Suite B
Prairieville, LA 70769
Appt by pres of Senate
Klingsberg, Ross C.6025 Pitt St
New Orleans, LA 70118-6010
Appt by Gov; Rep academic research inst that conducts rare disease research
Malbrue, Jantz M.2263 Lark St
New Orleans, LA 70122-4317
Appt by Gov; Rep LDH
Moore, Carolyn L.18762 Lake Harbor Ln
Prairieville, LA 70769-5278
Appt by Gov; RN or advanced RN w/ exp in treating rare diseases
Rouse, Kelly, MS, BCBA, LBA425 Elmwood St
Shreveport, LA 71104-5009
Appt by Speaker of House 8/20/2021; Appt Vice Chair by Gov 1/21/2022
Williams, Lauren R.17031 Bradford Ave
Greenwell Springs, LA 70739-5766
Appt by Gov; Rep of a rare disease patienr org







If you experience any technical difficulties navigating this website, click here to contact the webmaster.
P.O. Box 94062 (900 North Third Street) Baton Rouge, Louisiana 70804-9062