| Member | Address | Seat Information |
| Vacant | | Appt by Gov; Geneticist |
| Vacant | | Appt by Gov; Rep LDH |
| Vacant | | Appt by Gov; Rep Rare Disease Patien Org |
| Vacant | | Appt by Senate Pres |
| Vacant | | Appt by Gov; RN or Advanced RN w/ Exp inTreating Rare Diseases |
| Vacant | | Appt by Gov; Phy w/ Exp in Rare Diseases |
| Andersson, Hans C. | 6030 Hurst St
New Orleans, LA 70118-6130 | Appt by Gov; Phy w/ Exp in Rare Diseases |
| Borrillo, Jennifer L. | 2901 Annunciation St
New Orleans, LA 70115-1003 | Appt by Gov; Rep Academic Research Inst that Conducts Rare Disease Research |
| Klingsberg, Ross C. | 6025 Pitt St
New Orleans, LA 70118-6010 | Appt by Gov; Rep Academic Research Inst that Conducts Rare Disease Research |
| Le, Stephen V. | 9 Glen Abbey Way
New Orleans, LA 70131-3340 | Appt by Gov; Person w/ Rare Disease |
| Rouse, Kelly, MS, BCBA, LBA | 425 Elmwood St
Shreveport, LA 71104-5009 | Appt by House Speaker 8/20/2021; Appt Vice Chair by Gov 1/21/2022 |
| Stelly, Trina L. | 675 Seven Arpents Rd
Arnaudville, LA 70512-5827 | Appt by Gov; Caregiver for Person w/ Rare Disease |